“He is the most loving little human.”

3 year old Carson has been diagnosed with a rare and severe mutation of the MECP2 gene. Carson's condition is a variation of Rett Syndrome, a syndrome most often affecting girls. The MECP2 gene is on the X chromosome. Because girls have two X chromosomes and boys have only one, the syndrome is more severe in boys and often fatal at an early age. In Carson's case, his life expectancy is 12-17 years. To learn more about Carson's disorder, please visit the Jan and Dan Duncan Neurological Research Institute at the Texas Children's Hospital.

When Samuel's Supper™ learned that Carson's grandmother Kelly (Carson's caregiver and legal guardian) was having difficulty making ends meet due to Medicare not providing adequate funding for Carson's care, we gladly stepped in to help meet a few expenses. 

"Thank you so much!!!" ~ Kelly 

Samuel's Supper™ also provided Carson with a Benik Belt after his surgery to insert a feeding tube. This belt is SO important to protect the site, provide easy access, and to keep busy little hands from becoming a big problem! : )

UPDATE: It is with heavy hearts that we share the news that Carson passed away unexpectedly on January 19, 2020, in a home filled with such love for this special little boy.